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September 30, 2013

From what I read, fall is

beginning to hit in the States, at least in areas where the foliage normally turns from green to gorgeous yellows, oranges, and reds, before the leaves drop to the ground.  Having spent most of my childhood in a part of the south where these changes did not occur (green leaves to brown overnight), I have grown to appreciate the splendor that is autumn in the Mid-Atlantic and Northeast.

This year, for obvious reasons, the only change we might observe here is to crank the A/C a bit more, as the days seem to get progressively warmer and more humid.  Or maybe it just seems warmer, since tomorrow is October 1, and by now in northern Virginia, we'd at least be pulling out sweaters or throwing on the occasional jacket.  Instead, I am enjoying photos that friends post on Facebook, baking pumpkin muffins courtesy of tetra-pak organic pumpkin, and thinking that I will only need a sweater at work for those days when  it seems the A/C is overdoing it.

There is another change I am not seeing here and before I mention it, I will just say how grateful I am.  For if there is nothing more disturbing when back in the States, as when I see the gorgeous fall colors corrupted on an annual basis by the pink.  You may remember this post I wrote early last October.  I was trying desperately not to be smacked by the pink, and yet, true to form, I managed to spend the whole month being hit with it.

While I have seen a few items here and there, to include a pink ribbon on the ajo polvo (ground garlic) at the store (yes, this is inexplicable to me, too), or the cover of a local magazine that discusses Cancer de mama (Really? Amazing how everyone seems to forget men are also affected), that is about the sum total.  There is a  local race, but it is under-advertised (by U.S. standards) and I have only seen one small poster on the local highway thus far.

What does this spell for me?  Total and utter relief.

There is nothing worse, in my opinion, than not only being diagnosed with something so awful, but to have it happen in the middle of an "awareness" month.  The problem is that there is no dearth of awareness, especially in the U.S.  There is pink everywhere in October, if for no other reason than companies want to look good by sharing in the pink.  After all, if you slap a pink ribbon on something, everything will magically be okay.

Let me assure you, that's not the way it works.  A pink ribbon does not change your diagnosis, it does not save your boob, it does not keep you from a painful surgery and recovery (or five, in my case).  A pink ribbon does not mean money will go anywhere.  When you see that pink ribbon, do you stop to look at the fine print? Do you read exactly where the money will go, what money is left after various and sundry administrative fees are deducted from it, corporate style salaries are paid, and the cost of advertising is removed? Do you find yourself buying a product just because it has a pink ribbon on it, because someone you know was affected, and you just want to help? 

If so, then stop.  Stop and find out who slapped that pink ribbon on the product.  Find out where the money goes (and if it's that giant K company, I would put that product back on the shelf and stop buying that brand), and what exactly it's how it's going to be used.  Ask yourself if you are buying the product because you really need it or because you somehow feel even the pittance of money that goes to said organization will really help.  Put the product back, write the name down, go home and then research the heck out of the product, the organization benefiting from said trickle-down donation, and decide if then that purchase will really do any good.

The reality is that no amount of pink ribbons will stop this from happening, nor will it give back to those of us who have lost so much throughout the years.  The truth is, the pink is just a giant slap in the face that reminds us every year for 31 days that a nasty cell infiltrated our bodies and forced us to have a few really bad weeks/months/years.  Corporations that may well make cancer-causing products then try to convince us that since they put a symbol on their product, it somehow means they really care and want to help us. If you want to donate to a facility that actually performs research, send the money directly to them and bypass the middle (and very expensive) man.

Breast cancer appears to be the only sickness that is supposed to be deemed as cute and pretty.  People seem to believe if you hand someone who is dealing with it a cutesy plaque with a pink ribbon, he or she will be so enraptured with the color, that somehow they will forget the doctor visits, the tests, the constant invasive questioning, the surgeries, the pre or post-surgical treatments, and most of all, that he or she may have lost a body part that not everyone deems necessary, but some  like to have.

The flip side of the coin is that people focus so much on awareness of one topic, they completely forget about others issues or that awareness, in and of itself, does very little.  Awareness did not save me from anything.  It did not change the course of my treatments, and in fact, if I needed awareness in any arena, it would be what it would be like to live with all of the changes the surgeries would foist on me. I knew when something was not right with my body and that's why I went to the doctor. Not because of a pink ribbon or a bra campaign on Facebook, but because a lump that does not go away after a week or two might not be mastitis.  Just like if I had a loose or painful tooth, I would go to the dentist. I don't need someone telling me every day for a month to see the dentist if my tooth hurts.

I would love to see less pink and more time spent on awareness of post-surgical and treatment changes.  Doctors tend to spend so much time focusing on the "getting rid of" that they forget just how much damage it can do to one's body and mind.  I know if I knew then what I know now, I would have radically scaled back my primary surgical choice and reminded my surgeon that it was my body she was dealing with, not hers. Survival factors (though I have no plans on dying from anything but crankypants old age), would be no different and I would feel less mutiliated (yes, really, some of us actually feel that way...and you know what? It's okay!)

I would have been far more vocal with my first oncologist and fired her the moment she told me that "No chemo was not a get out of jail free card," while discussing the Tamoxifen issue.  After all, if this wasn't my fault (something I was repeatedly told), why was I to feel that I was supposed to be in jail?  Never mind that she could not prove to me that Tamoxifen could be helpful, even more importantly, not fatal with my family history of pulmonary embolus issues. Last, but not least, she told me she would not be held liable if anything happened to me. Um, right.

I would have loved an awareness that my getting back to normal revolved not around overtreating something that was removed from my body and likely never to return, but simply getting on with my life. The counselor who told me to just "take 18 months off" had clearly never been through anything similar and I would have given anything for her to be aware of the pain her words caused me. 

Instead of shaking in my boots and just trying to breathe when the first radiation oncologist screamed at me that I "might be stage 3" (no evidence to support that from any tests),  I would have told him where to stick in and walked out of the room.  In fact, the only doctor who I still would consider seeing (but I don't need to do so) from the first *set,* if you will, is the plastic surgeon.  He actually commented that he was grateful I didn't fire him. I just smiled and nodded, but probably should have told him that since he treated me like a person with a few brain cells to rub together, I did not find the need to send him down the not-so-primrose path the others took.

Let's have awareness that those who are dealing with this issue might need nurturing, hand-holding, or just a day to bloody forget about all of the decisions they are struggling with. They might want to not stress about meals, extra money for child care, or who is going to walk the dog while they are recovering.  Be like all of my amazing friends around the world who brought me food (okay, those in the tri-state area), organized said bringing of food, collected donations (insanely helpful for the extra daycare Nick needed), brought me warm blankets, and called to gossip about anything but what I was going through.  They took me to lunch, we stressed about Foreign Service stuff, and they kept me going when I was enmeshed in a sea of painful pink.  They didn't use words like battle or survivor (those are also on my bad list), but instead reminded me about the joys of bidding and insisted on conversing about where we would go next.  And...that got me through.  Not glittery pink scarves or not walks that went nowhere (and required insane amounts of money just to register), but friends and their awareness of what really mattered.

Most of all, take fall to be aware that life is short and needs to be enjoyed. Put down that pink-beribboned item, go outside and breathe in the autumn air. Enjoy the foliage, go to a corn maze, and pick some apples or pumpkins.  Life can be short for any one of 18,000 plus reasons, and buying into the pink ribbon program (like the $200+ pink Uggs) won't change that.  Do think of us when you pick a pumpkin (we will miss that this year), just don't pink it, k?

 

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Yes, yes, yes!! Let's stop the marketing insanity & get real. I'm going to find the most beautiful fall foliage, take lots of pix, and post them, Jen, for you & for me. They will surely be a lot more therapeutic than a sea of pointless pink. xoxo

FYI, while "mama" can mean "mother," it also means "breast." And, great post.

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